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  • Feb 22nd, 2005
  • Comments Off on First public sector thalassemia centre at PIMS inaugurated
The Federal Secretary for Health, Anwar Mehmood, has inaugurated first "Thalassemia Centre" in public sector at Pakistan Institute of Medical Sciences (PIMS) here on Monday. The centre will provide "free medical consultation", genetic counselling, specialised pathology investigations, safe blood transfusion and chelation therapy to thalassemia patients. Presently, the centre has 15 bed capacity and 250 children are registered as patients, who will receive free blood transfusions.

The centre will also offer advice and counselling not only to parents of the children but to relatives regarding disease, if they desire.

Thalassemia is the disease, which kills unless treated properly and in time, usually in children, having chronic anaemia and patient dependent on regular blood transfusion for survival.

Professor Fazle Hadi, Executive Director, Dr Tahira Zafar, Consultant Haematologist, Professor Khalid Hassan, Head of Haematology Division and Dr Hassan Abbas Zaheer, Incharge, blood transfusion services were also present in the inauguration ceremony at PIMS.

Anwar Mehmood said that that around three to five percent population of the country have the gene of the deadly "thalassemia" diseases and close cousin marriages are the root cause so people must avoid cousin marriage to avoid the disease in their families.

He said that the ministry has decreased the price of "Desferrol Injection", by 30 percent, to provide relief to the patients.

Dr Fazle Hadi, Executive Director of the PIMS, said that medical care provided to these patients in most of the hospitals are inadequate due to the lack of awareness among general public about the disease and financial constraints.

He further added that problems regarding availability of safe blood transfusions, inadequate chelation therapy necessary for removing excess iron from the body and accumulated due to repeated blood transfusions are also the major hurdles in treatment of the disease.

Professor Fazle Hadi urged the people of the country to donate blood to save the life of these children.

He said that estimated annual cost of medication for the treatment of one "transfusion dependent thalassemia patients" is Rs 6,000.

The vast majority of the patients belong to low income group and in many cases more than one sibling is affected, which produce tremendous strain on the financial resource of the family, so he urged the community to donate at least Rs 6,000 to cover the expense of one year's treatment of one thalassemia affected child.

He said that a public awareness campaign about thalassemia and its eradication from the society would also be launched soon by the team of the centre.

He said that haematology lab would be operational at PIMS soon to provide better health facilities.

Dr Tahira Zafar, consultant haematologist, ensured provision of quality of medical management including chelation therapy. She said that transfusion of blood is the only method for treatment and added that after the consultation with gynaecologist the disease could be diagnosed.

She said that patients must reduce the use of iron and take "folic acid" medicines.

Dr Hassan Abass Zaheer, in charge of blood transfusion services, ensured that all thalassemia patients would receive fully screened and safe blood transfusions.

Copyright Business Recorder, 2005


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